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病人 & Consumer Engagement

皇冠365app首页 is committed to supporting and fostering collaboration between consumers, 病人, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, 病人 and consumers.

博客       The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize 股本, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
发布 2021年11月9日 By Rachel Campbell-Baier , 凯特琳水獭
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The Blueprint: October 2021 Paradigm Project Updates

The latest edition of the Blueprint spotlights the Paradigm Project’s most recent report that examines open science and includes possible next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
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Reimagining Academic Incentives and Rewards in Health Services Research

This brief summarizes key points from a May 2021 meeting convened by 皇冠365app首页 as part of the Paradigm Project to explore redesigning academic incentives to prioritize the social impact of health services research. The meeting underscored the importance of diversity, 股本, and inclusion -- among other factors -- in incentivizing research that has impact.
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博客       Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
发布 2021年8月23日 By 海伦Moniz
博客       Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary 病人-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.